Research Focused on the Nightscout Community
Journal Articles
Lee JM, Hirschfeld E, Wedding J. A Patient-Designed Do-It-Yourself Mobile Technology System for Diabetes: Promise and Challenges for a New Era in Medicine. JAMA. 2016 Apr 12;315(14):1447-8. Link. Supplement Link.
Lee JM, Newman MW, Gebremariam A, Choi P, Lewis D, Nordgren W, Costik J, Wedding J, West B, Benovich Gilby N, Hannemann C, Pasek J, Garrity A, Hirschfeld E. Real-World Use and Self-Reported Health Outcomes of a Patient-Designed Do-it-Yourself Mobile Technology System for Diabetes: Lessons for Mobile Health. Diabetes Technol Ther 2017 Feb 28. Link.
Kaziunas E, Lindtner S, Ackerman MS and Lee JM. Lived data: Tinkering with bodies, code and care work. Human-Computer Interaction, Special Issue on The Examined Life: Personal Uses of Personal Data. (Forthcoming)
White K, Gebremariam A, Lewis D, Nordgren W, Wedding J, Pasek J, Garrity A, Hirschfeld E, Lee JM. Motivations for Participation in an Online Social Media Community for Diabetes J Diabetes Sci Technol. 2018 Jan 1:1932296817749611. doi: 10.1177/1932296817749611. Link.
Peer-reviewed Conference Papers
Kaziunas E, Ackerman MS, Lindtner S. and Lee JM (2017). Caring through data: Attending to the social and emotional experiences of health datafication. CSCW '17: Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing February 2017. Link
Conference Proceedings
Kaziunas E, Lindtner S, Ackerman MS, and Lee JM. DIY Diabetes Technology in the Nightscout Community: An Ethnographic Study. In Proceedings for CHI '16. Workshop on DIY Health and Wellbeing. Conference on Human Factors in Computing Systems 2016.
More information about Nightscout and CGM in the Cloud below:
You can read more about the evolution of the project in the Wall Street Journal, Citizens Hackers Concoct Upgrades for Medical Devices and the New York Times, A Do-It-Yourself Revolution in Diabetes Care.
For a more detailed history of how it came about, read this blogpost by Kerri Sparling, We Are Not Waiting: CGM in the Cloud (Part 1).
Read more about the mission of the Nightscout Foundation.
Videos:
John Costik: We #MakeHealth Fest 2014 Keynote
James Wedding: We #MakeHealth Fest 2015 Nightscout Symposium
Weston Nordgren: We #MakeHealth Fest 2015 Nightscout Symposium
Nate Heintzman: We #MakeHealth Fest 2015 Nightscout Symposium
Joyce Lee: Nightscout Research 2015 Quantified Self Public Health Symposium